Centre for Internet & Society

Ethics and Human Rights Guidelines for Big Data for Development Research

by Amber Sinha, Manjri Singh, Rajashri Seal, Pranav Bhaskar Tiwari, Pranav M Bidare

This is a four-part review of guideline documents for ethics and human rights in big data for development research. This research was produced as part of the Big Data for Development network supported by International Development Research Centre, Canada

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Is India's Digital Health System Foolproof?

by Aayush Rathi

This contribution by Aayush Rathi builds on "Data Infrastructures and Inequities: Why Does Reproductive Health Surveillance in India Need Our Urgent Attention?" (by Aayush Rathi and Ambika Tandon, EPW Engage, Vol. 54, Issue No. 6, 09 Feb, 2019) and seeks to understand the role that state-run reproductive health portals such as the Mother and Child Tracking System (MCTS) and the Reproductive and Child Health will play going forward. The article critically outlines the overall digitised health information ecosystem being envisioned by the Indian state.

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The Mother and Child Tracking System - understanding data trail in the Indian healthcare systems

by Ambika Tandon

Reproductive health programmes in India have been digitising extensive data about pregnant women for over a decade, as part of multiple health information systems. These can be seen as precursors to current conceptions of big data systems within health informatics. In this article, published by Privacy International, Ambika Tandon presents some findings from a recently concluded case study of the MCTS as an example of public data-driven initiatives in reproductive health in India.

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Big Data and Reproductive Health in India: A Case Study of the Mother and Child Tracking System

by Ambika Tandon

In this case study undertaken as part of the Big Data for Development (BD4D) network, Ambika Tandon evaluates the Mother and Child Tracking System (MCTS) as data-driven initiative in reproductive health at the national level in India. The study also assesses the potential of MCTS to contribute towards the big data landscape on reproductive health in the country, as the Indian state’s imagination of health informatics moves towards big data.

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You auto-complete me: romancing the bot

by Sumandro Chattapadhyay

This is an excerpt from an essay by Maya Indira Ganesh, written for and published as part of the Bodies of Evidence collection of Deep Dives. The Bodies of Evidence collection, edited by Bishakha Datta and Richa Kaul Padte, is a collaboration between Point of View and the Centre for Internet and Society, undertaken as part of the Big Data for Development Network supported by International Development Research Centre, Canada.

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Data bleeding everywhere: a story of period trackers

by Sumandro Chattapadhyay

This is an excerpt from an essay by Sadaf Khan, written for and published as part of the Bodies of Evidence collection of Deep Dives. The Bodies of Evidence collection, edited by Bishakha Datta and Richa Kaul Padte, is a collaboration between Point of View and the Centre for Internet and Society, undertaken as part of the Big Data for Development Network supported by International Development Research Centre, Canada.

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Can data ever know who we really are?

by Sumandro Chattapadhyay

This is an excerpt from an essay by Zara Rahman, written for and published as part of the Bodies of Evidence collection of Deep Dives. The Bodies of Evidence collection, edited by Bishakha Datta and Richa Kaul Padte, is a collaboration between Point of View and the Centre for Internet and Society, undertaken as part of the Big Data for Development Network supported by International Development Research Centre, Canada.

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Data Infrastructures and Inequities: Why Does Reproductive Health Surveillance in India Need Our Urgent Attention?

by Aayush Rathi and Ambika Tandon

In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article by Aayush Rathi and Ambika Tandon posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices unveils the gendered power differentials wedded into taken-for-granted “benign” monitoring processes. The unpacking of the Mother and Child Tracking System and the National Health Stack reveals the neo-liberal aspirations of the Indian state.

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